Education, training and health. How to build a rare disease pathway for the unborn child?

Education, training and health. How to build a rare disease pathway for the unborn child?

co-authored by Séverine Colinet (BONHEURS/LEPS) and Céline Avenel (LIRDEF), has just been published by Presses Universitaires de la Méditerranée.

The aim of this book is to analyze the announcement process, from the point of view of both medical teams and patients, in order to grasp the challenges of training healthcare professionals
and to take into account the particular situation of an unborn child with a rare disease.
This book focuses on a fundamental change in the healthcare system, at the crossroads of training, professionalization, care and professional ethics: patients are actors and partners in the announcement process. The care team takes on a pedagogical role: developing communication, providing information in a context of uncertainty, and preparing the decisions that will be co-assumed by doctors and patients.
The general social aim of the book is to understand the diagnostic announcement process and to reflect on new training perspectives, so that they are as in tune as possible with the changes that are shaping the process and the professionalization of those involved.
This book looks at the transformation of the roles of parents and medical teams, and even of professional identities, with the emphasis on the co-construction of a response to therapeutic patient education.

Booklet-> Prospectus_Education-Training