Education, training, and health. How can we develop pathways for reporting rare diseases in unborn children?

Education, training, and health. How can we develop pathways for reporting rare diseases in unborn children?

A book co-authored by Séverine Colinet (BONHEURS/LEPS) and Céline Avenel (LIRDEF) has just been published by Presses Universitaires de la Méditerranée.

This book aims to analyze the process of breaking bad news, from the perspective of both medical teams and patients, in order to understand the challenges of training healthcare professionals in communication skills and to take into account the specific situation of an unborn child with a rare disease.
This book focuses on a fundamental change in the healthcare system, at the crossroads of training, professionalization, care, and professional ethics: patients are actors and partners in the process of delivering news. The healthcare team is moving towards an educational role: developing communication, providing information in a context of uncertainty, and preparing decisions that will be made jointly by doctors and patients.
The overall social aim of the book is to understand the process of communicating diagnoses and to reflect on new training perspectives so that they are as closely aligned as possible with the changes that are shaping the careers and professionalization of those involved.
This book considers the transformation of the roles of parents and medical teams, and even professional identities, with an emphasis on the co-construction of a response to therapeutic patient education.

Book description-> Prospectus_Education-training